Ethiopia Materials

In Ethiopia, the American Cancer Society partnered with the Federal Ministry of Health to develop four materials: 

  • Booklet for cancer patients
  • Booklet for caregivers
  • Reference Guide for health care providers 
  • Flipchart for patient education (job aid for providers) 

Representatives from the Non-Communicable Case Team within the Disease Prevention and Control Directorate of the Federal Ministry of Health of Ethiopia, the Mathios Wondu YeEthiopia Cancer Society, the YeEthiopia Cancer Association and Tikur Anbessa Referral Hospital provided technical guidance. The Johns Hopkins Center for Communication Programs and Qayana Communications facilitated the development process. 

The team began by mapping cancer support services in Ethiopia and reviewing literature about cancer patients' and caregivers' knowledge, attitudes, and practices.  

To better understand patient, caregiver and health worker communication needs, the team pretested Amharic translations of two U.S. ACS booklets among patients, caregivers, and health workers. These activities revealed that delays in diagnosing cancer are common and that a typical cancer patient has been treated for symptoms by traditional healers, local clinics, and regional hospitals before being referred for cancer treatment. Treatment is expensive, and the costs of transportation, food, and lodging add to the difficulties of patients and caregivers. The causes of cancer are not well-known and some people believe that cancer might be contagious. Health workers asked for specific guidance on how to counsel cancer patients about nutrition, side effects, and coping. This request led to the development of a new document specific to Ethiopia, “A Guide to Cancer for Health Care Professionals” (see below).

Based on these findings, the team developed content for the four materials. All materials are available in English and Amharic.

Material                                  Key Features





English (quick view)

English (download to print)

Amharic (quick view)

Amharic (download to print)

After Diagnosis: A Guide for Patients (48 pages)

  • Offers expanded content on social/emotional aspects of having cancer and how to talk with others including children
  • Features many direct quotes from patients, caregivers, providers
  • Counters perception that cancer is a death sentence
  • Specifies that cancer is not contagious
  • Corrects perception that sin or wrongdoing causes cancer
  • Gives detailed information on managing side effects
  • Provides details on how to make appointments, register for treatment, account for wait times, and register for poverty certificate to cover treatment costs.

 

English (quick view)

English (download to print)

Amharic (quick view)

Amharic (download to print)

Listen With Your Heart: What We Can Do To Take Care of a Loved One With Cancer (44 pages)

In addition to the adaptations from the patient booklet, this booklet: 

  • Advises on how to deal with unexpected emotions; changes in family routines and the relationship with the patient
  • Offers helpful tips on how to advocate for the patient within the health system and the community
  • Helps caregivers know what to expect when the end of life is near
  • Gives tips on how to ask others for help; self-care.

 

English (quick view)

English (download to print)

Amharic (quick view)

Amharic (download to print)

Cancer Information for Patients (Flipchart for Providers - 53 Pages)

  • A job aid for use by health workers when educating clients and their family members about cancer
  • Each page has a large illustration to share with patients, with talking points on the reverse side
  • Presents similar information to the one in patient and caregiver booklets
  • Ensures that health workers provide consistent information to all patients. 

English (quick view)

English (download to print)

Amharic (quick view)

Amharic (download to print)

A Guide to Cancer for Health Service Professionals(40 pages)

  • Introduces the GATHER approach to counseling, a patient-centered approach that improves patient satisfaction
  • Has a chapter offering basic biomedical information on cancer, as requested by health workers
  • Includes information about management of side effects
  • Encourages health workers to take care of themselves and acknowledges the stressful nature of their work.